Saturday, September 19, 2015

Trying to help the normies relate...

So today I am in pure pain... knees, ankles, wrists, elbows, back and neck.

Jenna asked if I wanted to go to her Lyme Disease Support Group meeting today and I declined not because I didn't want to go but because the thought of sitting in a conference room chair for 3 hours just sounded like something I wasn't up to. I think this is the first time I've decided not to go to an even because I knew my pain was too high.

And what the hell is with my elbow? It's not like it even gets much stress... and yet it's at a solid 3-6 (it randomly shifts) with spikes to 8-ish. Why? I have been babying it a bit... I think I need to get a neoprene wrap for it just for the compression.

For those of you that don't understand or have a challenge relating... think of the day after a heavy, heavy workout: the pain not just in your muscles but how it's amplified whenever you use those muscles. Now take away the workout (i.e. it's for no reason other than being alive), make that pain spike come from something as simple as lifting a coffee cup or even a fork, put in every commonly used muscle in your body, and your tendons and ligaments and joints... and then make it all day every day.

Now take away the chance that Tylenol or ibuprofen will do much for the pain.

That's a GOOD day. On a bad day we have joints popping out of sockets and cartilage crunching and/or tearing all over the place.

Maybe you can sort of start to kind of relate in a tiny way? 

In other news, I have some blog posts coming up that should be a little more uplifting. I have been giving some energy to my other hobbies/interests/passions and have realized that I should be sharing some of those things here too. So... that'll be fun!

I've discovered that swimming in the pool with the childebeast is getting more and more fun all the time... my swimming is improving and my upper body is developing a bit. That's really cool.

Now I just have to keep my ass in gear getting some real work done so I can make the living I need to make to pay for insurance and a decent diet... and hopefully get us out of this apartment into a real house someday. :)

Laterz, all!

Saturday, September 5, 2015

Bet you thought I was gone!

I know, I know... bloggers come, bloggers go. I got off to a good start, but then... crickets.

Did you think I gave up? Wrong! Hah! Fooled you. *wink*

So here's last couple weeks in review:

A couple weeks ago my employer, Vemma, was raided by the FTC. If you were to look at the actual list of things I expected to happen to me in my life, working for a company raided by the feds was NOT on it. In any case... they shut us down on the spot. Fortunately I had a freelance gig in place and was able to keep working, though it really messed up the flow of life.

I feel very fortunate.

But then in the subsequent days I found out my posterior cruciate ligament (aka PCL) - one of the major ligaments to hold your upper and lower leg together, is likely torn, possibly entirely severed.

So I'm now on crutches and pain meds. Yay.

I never really realized just how much pain I'm actually in all the time until I started taking pain meds regularly. On the other hand my primary care doc's office told me they won't prescribe ongoing pain meds for chronic pain patients... which really makes you wonder what they're there for other than to tell me that a cold is a virus and drink fluids. Hell I can take my own BP at home.

Sheesh... whatever...

And then just to top it all off, our last checks from Vemma were delayed by 3 days because the law firm that is running the company while it's in receivership screwed up and played blame games with the bank rather than getting payroll done on time. What was supposed to be here Thursday morning wasn't here until this morning. Way to add insult to injury, guys! lol

On the other hand everyone is still alive, the pain meds have kicked in and I have a wonderful family that loves me. I don't suppose it gets much better than that, with or without the EDS issues. :)

Anyway... it's been a rough couple of weeks. Sorry for the blackout... here's to keeping up better in the future.

Laterz!